Bookscoops

The Scoop on Children & Adolescent Literature

Posts Tagged ‘epilepsy awareness’

Up and Down the Scratchy Mountains by Laurel Snyder

Posted by caribookscoops on May 7, 2012

I read this book about 2 months ago and absolutely loved it! I first heard of Up and Down the Scratchy Mountains when Laurel Synder (she has epilepsy) participated in our Purple Day challenge for epilepsy a few years back.  Some books take a while to start enjoying, but Up and Down the Scratchy Mountains was enjoyable from the start.

Lucy is a milkmaid whose best friend happens to be the crown prince named Wynston. Unfortunately, as she and the crown prince are getting older, protocol gets in the way. Apparently a milkmaid could never marry the prince no matter how much they liked each other. Frustrated with the sudden absence of her best-friend she sets off on a zany and wild adventure to find her mother.

Not much more to say than that without ruining anything, but it was a fun read. I laughed and cried and then laughed some more.

Laurel Synder’s Website

Posted in Fantasy, Middle Readers | Tagged: , | Leave a Comment »

Reading for Epilepsy Awareness 2011: Purple Day Challenge Report and Giveaway Winners

Posted by caribookscoops on May 26, 2011

First I want to say thank you to all who participated. We had several who participated from outside the U.S. What a thrill to know that Purple Day really is an international day for epilepsy awareness. We raised another $50.00 for CURE!!!!!!!!!! For my family, Purple Day went well despite 2 of my 3 children being sick, my husband arriving home from a business trip at an unearthly hour in the morning and of course, to really top it off, a few seizures at my brother’s wedding reception.

My daughter, my grandma and my grandpa who also has epilepsy - related to age and stroke

I am nervous to write this post. Actually, I am T-e-r-r-i-f-i-e-d with a capital T and here’s why. I know I am being irrational, but  every time I  start to post more on our blog, my daughter has a seizure. I know that writing a blog post has nothing to do with her having a seizure, but I still can’t help myself. There is this desperate part of myself that I have to keep in check that wants to control the seizures when really I can’t. I can give her the medicine and make sure she sleeps well, but that’s about all the control I have. Most of the time I let the rest go, but lurking in the back of my mind is the vivid image of her turning blue. Then checking to see if she was breathing, and not seeing her chest move or feeling any air coming out of her mouth as she lay on the floor of the school’s main office. Talking to the principal while the secretary called for the paramedics. Paramedics rushing in with oxygen and other life-saving equipment that I don’t even want to think about. All this in my mind while I try to remember to let her live like the seven- year-old girl that she is.

My brother and his beautiful bride along with my daughter. Their wedding colors were Day-Glo colors hot pink and lime green - one of the co-inventors had epilepsy

A big part of me wants to shelter her and keep her in a box. A magic box that would prevent seizures. Can someone invent that, please? I’d almost sell my soul for that, but then I remember that she is a child with dreams and hopes for the future. Did I ever tell you about her love for swimming? Seizures can be deadly especially when swimming or bathing. One of my co-workers lost her nephew with epilepsy to drowning during a seizure at his high-school graduation party. I try to push all of  these thoughts out of my mind and I let her swim anyway. The more rational part of myself realizes to not let her take risks could be more detrimental than her actual seizures.

Although, her body decided to celebrate Purple Day with some seizures, it wasn’t so bad. Just a few absence seizures not a full on tonic-clonic seizure. All of her Tonic-clonic seizures have been preceeded by absence so it made me nervous, very nervous. There are people who have several hundred seizures a day or seizures that go into status on a regular basis, but I still cannot get over how scared and vulnerable the seizures make me feel. It makes my heart race every single time. Even for the short ones. After talking to the nurse at her neurologist’s office we determined that she was having break-through seizures due to a recent growth spurt. In the last several months she has gone through two shoe sizes, a new violin and several pairs of pants. So it would seem she needed an increase in her medication.

I feel like I am being extra brave just posting about Purple Day and we really did have an excellent day.

Princess Amerah at school for Purple Day

For the ultimate celebration, I invited Princess Amerah aka Justine Greene, to come to my daughter’s school and read part of her book, Princess Amerah and the Magic Dress, for Purple Day. She graciously agreed. Justine happens to have a brother who has epilepsy. It was so wonderful of her to come and share not only her beautiful book and her wonderful singing voice, but she told my daughter’s class about her brother’s experience with epilepsy. In fact he was the model for a character in her book, Walter the Watermelon Man.

Princess Amerah and my daughter and her friend who has Dravet Syndrome, a rare form of epilepsy

Her book is amazing. Princess Amerah and the Magic Dress is currently sold out, but if you visit her website you can get on the waiting list for when the revised version comes out. I can hardly wait for the book to come out.

Thank you again for all who participated!!!!!!!!!!

Our Giveaway winners are . . . .

Christina at Overcoming Movement Disorder

and

Kelson

Please contact me by June 3rd with your address and which book you would like either When you Reach Me or The Day Glo-brothers so I can mail out your book, otherwise I will draw another person.

Posted in Challenges, Epilepsy, Giveaways | Tagged: , , | 2 Comments »

Purple Day Challenge & Book Giveaway 2011: Supporting Epilepsy Awareness Around the World on March 26th

Posted by caribookscoops on March 7, 2011

Bookscoops is again thrilled to announce that we are participating in Purple Day, an international day to promote epilepsy awareness this year. For those of you new to our blog, we are two sisters – Cari and Holly who read and review books to promote literacy. Cari’s daughter was diagnosed with epilepsy in October of 2009 and this has been an interesting journey as her family and daughter have come to terms with diagnosis and what it means. Our whole family plans to celebrate Purple Day again this year and one of our brother’s is getting married on Purple Day.

Why Bookscoops is going purple?

Well like we said, Cari’s oldest daughter was diagnosed with epilepsy almost a year and half ago. She has Generalized Seizure Disorder and experiences Tonic-Clonic Seizures, formerly known as Grand Mal as well as Absence Seizures. She is very bright and full of potential. Epilepsy is only part of her as a human being as she loves to read and is bi-literate in English and Spanish. She also enjoys spending time with friends, swimming and playing the violin. Recently, she started karate and enjoys practicing her kicks and punches around the house.  One of my biggest frustrations is the lack of information and misconceptions surrounding this disorder and particularly the lack of funding it receives. I feel that one of the best ways to help her deal with this is to raise awareness. Her life with epilepsy can be made easier and safer as more people know about this common disorder and learn how to respond with appropriate first aid.

Photo of Cari's daughter by Jessie Lynne Photography, click on photo to visit her website

In addition, we wanted to raise awareness about epilepsy because it is the second most common reason people see a neurologist behind migraine. Epilepsy affects 50 million people world wide and about 3 million people living in the United States have epilepsy. More people have this condition than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson’s disease combined and every year more people will die of epilepsy than breast cancer. Unfortunately, a lot of myths and false ideas are still being perpetuated about epilepsy (such as it is a mental condition or that epilepsy is contagious). Some of these misconceptions have caused many people to become isolated and live in fear and shame that someone will find out about their condition and many people have faced discrimination based on their medical diagnosis.

Who Can Participate and How to Participate?

There are number of ways to participate in our second annual Purple Day Challenge and because we love to promote literacy we are combining both reading and Purple Day starting on Monday Mar 7th and ending on Sunday, March 27th. While our blog focuses on children and adolescent literature we are inviting anyone to go purple!!!! So that means any person, author, book blogger or blogger who wants to promote Purple Day may participate. To make this easy on you (and us) choose any or all of the following.

1. Post the Purple Day Button on your blog, facebook or tweet about our challenge on Twitter, starting on Monday, March 7th through Sunday March 27th and write a post promoting Purple Day. Please note we have received permission to use the Purple Day logo as part of this challenge. If you choose this option you must read and agree to the copyright notice on the Purple Day website by using the logo you are stating that you have read and agree to their terms of use. Two sizes of buttons are at the bottom of this post.

2. Read a book about epilepsy and post a review. For a list of books for children go to Epilepsy.Com. Use the Reading for Purple Day Button to declare your participation & link to this post.

3. Read a book by or about a famous person with epilepsy and post a review. Don’t forget to use the Reading for Epilepsy Awareness button. Cari’s daughter’s favorite so far is The Day-Glo Brothers: The True Story Behind Bob and Joe Switzer’s Bright Ideas and Brand-New Colors, which also is a Cybils winner for 2009. Some names you might know are Harriet Tubman, Alfred Nobel and Charles Dickens and more recently actor Danny Glover, football player Alan Faneca and track star, Florence Griffin Joyner known as Flo Jo. For a more complete list visit The Epilepsy Foundation or if you’re a fan of Wikipedia see the List of Famous people with Epilepsy, which to be honest seems to be the best documented list we’ve found so far.

4. Read a book that promotes self-confidence and acceptance in children and post a review. Suggested books so far with a very appropriate title, Purplicious by Victoria Kann and Elizabeth Kann and Little Skink’s Tail by Janet Halfmann, illustrated by Laurie Allen Klein & again don’t forget the Reading for Epilepsy Awareness Button.

5. If you or a family has dealt with epilepsy write a post sharing your experience.

6. Wear purple on March 26th and tell people why you are wearing purple.

7. Click on the link to watch a short interview with Katie Couric and write about what the things that you learned you in a blog post, or if you don’t have a blog put it in the comments for this post.

8. Have an idea not listed above submit it and we’ll give you another entry. So if you think of something put a comment in the comments below.

For every entry we receive, Cari will donate 25¢ per entry for a total of fifty dollars to a non-profit organization that works towards epilepsy awareness and/or research and Holly will match Cari’s donation. Multiple entries are possible. One entry equals doing one of the seven items listed above.

Our Goals for this Challenge

Our goal is three-fold 1) to promote Purple Day and raise epilepsy awareness, 2) to dispel myths surrounding epilepsy and 3) to compile a more comprehensive list of books that portray epilepsy and/or people with epilepsy accurately, especially for children. Finally we do hope to raise some money for epilepsy awareness.

How to Enter and When Does it End?

Sign-up in the comments below telling us who you are and what you are planning on doing to participate. Make sure you leave a link to your blog. If you post about this challenge please leave us a link in the comments to your post and we will put together a list of everyone who participated with links to their blog posts as the week progresses. The Purple Day mini-challenge begins on March 7th and ends March 27th , midnight MST.

Rewards for this Challenge:


  • For everyone who participates we will enter them in a book give away for When You Reach Me by Rebecca Stead, the 2010 Newberry Winner as well as the Day-Glo Brothers: The True Story Behind Bob and Joe Switzer’s Bright Ideas and Brand-New Colors, which also is a Cybils winner for 2009. Both books have characters with seizures. Please note: This open to continental U.S. residents and international participants where it would cost less than $10.00 to ship & ends on March 31st mountain standard time.
  • The good feeling that you are helping other people become aware of a disorder that affects millions of people world wide.
  • Last year we raised $50.00 to donate to CURE. This year we would like to raise more, remember Cari is willing to donate .25¢ up to a total of fifty dollars and Holly will match her donation to a non-profit organization that works towards epilepsy awareness and/or research for each person who commits to participate by doing any of the 8 options above. See above for details of how to enter and participate.

Interested in sponsoring our Literacy and Purple Day challenge?

If you are an author/publicist and have a book that you think would go well with Purple Day we will consider doing a review of your book and/or host a giveaway. Please contact us at caribookscoops (at) ymail  (dot) com or hollybookscoops (at) ymail(dot)com.

Non-profit Groups that promote Epilepsy Awareness, Education and Fund Research

Consider donating to one of the groups below:

Purple Day – Founded by Cassidy Megan, a child with epilepsy to promote global epilepsy awareness.

CURE Citizens United for Research in Epilepsy – raises money for epilepsy research.

Epilepsy Foundation an organization dedicated to advocacy, education and research.

Epilepsy Association of Utah – The group in Cari’s state dedicated to educating the public and supporting persons and their families with epilepsy.

Anita Kaufman Foundation – Dedicated to educating the public to not fear epilepsy.

Purple Day Button

We have provided two sizes for the button. If you would like to use the Purple Day Button you must read and agree to the copyright notice on the Purple Day website by using the logo you are stating that you have read and agree to their terms of use.

Posted in Challenges, Giveaways | Tagged: , | 14 Comments »

Purple Day Challenge Report and Thank You!!!!

Posted by caribookscoops on July 14, 2010

First off Holly and I would like to say thank you to all who participated. We  feel that our first Purple Day Mini-Challenge was a success and we could not have done that without the help of some loyal readers, family and friends. Not everyone was comfortable making comments in a public forum and I received several emails telling me that people were participating. We would like to spotlight the blog posts, authors, book bloggers and others who participated this year.

As this post is a bit late, I also wanted to give you an update on my daughter. Although it seems like whenever I do an update she has another seizure so I am a bit nervous. We are almost 3 months seizure free. Her last seizure was in mid-April, during the night. We are cautiously optimistic that her medication is starting to work, but again we won’t really know for several more months. The goal is to go at least 6 months seizure free and then 12 months, and at that point we will be fairly confident that the medication is working. Other than that we have enjoyed the summer, including swimming, reading, violin lessons and waiting for baby #3 to make his debut. Thanks again for all your support we hope by raising awareness we can bring more light to this disease and contribute to a cure with a monetary donation. Here are the participants:

Blogposts

Jessica – A good friend of Cari’s, who did the photo of Cari’s daughter, if you live in Utah check our her photography website.

Cynthia in Northern Utah – Daughter Ashlyn recently diagnosed with epilepsy. She went all out even decorating her front door purple.

Cristina @ Being Bertrand, Overcoming Movement Disorder – Her son has epilepsy and an undiagonosed genetic disorder,  and Cari met her through Lynn @ Infant Bibliophile. Cristina invited her to attend the Epilepsy Conference in Utah, for which Cari is very grateful.

Book Bloggers

Natasha Maw @ Maw Books, real life friend of Cari. Our children play together. Here are the links to her post about Purple Day and her review of Little Skink’s Tail.

Kim @ Good Clean Reads – Whose 4 year old son has epilepsy. Go read her post Our Epilepsy Story.

Barbara @ On the Bookcase Has had epilepsy for 40 years.

Stephanie @ Stephanie’s Written Word Whose daughter, Leah has epilepsy and Stephanie reviewed Becky the Brave, A Story About Epilepsy.

Britt @ Confessions of a Book Habitue – Had a baby the week of Purple Day and still managed to participate. You go girl! Our daughters are good friends and love playing together.

Sharon @ SherMeree’s Musings

Authors

Laurel Snyder – Author of Any Which Wall, Up and  Down The Scratchy Mountains and many more fun sounding titles. She also has had epilepsy from childhood. She wrote a lovely post about having epilepsy. As many of you know seizures occur when the brain has abnormal electrical activity. My favorite quote from her blog post ‘We are all human. Electric. Some of us more electric than others…”

Janet Halfmann – Author of Little Skink’s Tail, a family favorite.

Friends & Family

  • Cynthia W.
  • Cari’s In-laws
  • Cari’s Grandparents
  • Lisa O
  • Jaron
  • Kelson
  • Cindy O’Neil
  • Tynan
  • Kelly
  • Ben
  • Kris, president of the Epilepsy Association of Utah
  • Numerous other cousins, aunts and uncles

Again we’d like to thank everyone who participated in Purple Day. We are excited to announce that we raised an even $50.00 to donate to Citizen’s United for Research in Epilepsy – CURE founded by Susan Axelrod.  I chose CURE because of their relenting efforts to unravel the mystery of epilepsy and ultimately find a cure. From an article written by Susan Axelrod entitled Agony, Hope and Resolve as part of a feature Newsweek did on Epilepsy called The Mystery of Epilepsy: Why We Must Find a Cure.

“We must accelerate research efforts in the field now and address this age-old problem with the urgency and intensity that it merits. Despite the broad public impression, seizures are not a trivial inconvenience. Each and every seizure carries with it the risk of brain damage, physical harm or even death. Until society accepts this and recognizes epilepsy as the serious health problem that it truly is, progress will continue to lag. Too many young brains will be forever affected. Too many lives will be lost.”

Thanks again for everyone who participated and we are deeply touched by those who participated. We plan to do this next year and hope to raise even more money to help find a CURE.

Posted in Challenges | Tagged: , | 2 Comments »

Purple Day Celebration Report

Posted by caribookscoops on March 27, 2010

On Thursday night we picked out my daughter’s outfit for Friday and changed her earrings to purple ones so she would be already for the big day. Yesterday was a teacher work day at school for me, which means no students, but I work with some awesome teachers. They wore purple ribbons made by my niece to show support for my daughter and at least a half-dozen other staff members who have family members with epilepsy.

I also made arrangements with my daughter’s wonderful kindergarten teacher and school administration to come in and do some activities for Purple Day. Then feeling in the Purple Spirit, I also contacted the mayor’s office over a week ago about declaring Purple Day for our city. Long story short Mayor JoAnn Seghini called me back personally, apparently her son had childhood epilepsy that he outgrew. The best is that she came to my daughter’s class yesterday and read a book about epilepsy called Taking Seizures to School by Kim Gosselin and illustrated by Moss Friedman. I love promoting literacy and epilepsy awareness at the same time. Mayor Seghini is a former educator who loves reading and she did an awesome job! If I could send her to other classes to read out loud with kids, not just for the epilepsy awareness, I would. She’s that good. Hopefully we make it into our local monthly newspaper, but the city will do a proclamation next month for sure.

A cute story from the reading of Taking Epilepsy to School.  While the mayor was reading the book a little boy said, “You said a bad word!” She said, “Did I? We’ll talk about it when we get done with the book.” So she finishes the book and asked the boy what was the bad word he heard and he replied, “stupid.” She agreed with him that it is a bad word because it is a mean word she continued by saying I think the author of this book used that word so you would know not to use it with people who have epilepsy or with anyone else. It is a mean word and it’s a good thing you know not to say it to other people.

In addition, we invited parents to come to the class so they could learn more about epilepsy. Another story made short is that one of the adults who came was recently diagnosed with epilepsy and was not aware of Purple Day. Because I had been in contact with the Epilepsy Association of Utah, the vice-president Margo Thurman attended and we were able to give the young lady some information about support groups and other resources. This young lady also mentioned that she has some other children’s books about epilepsy and she could bring them to the teacher if I was interested in looking at them. Being the book lover I am, I said yes!!!

Our family had a great Purple Day. I’d like to say thank you to the staff at my school, my daughter’s school, my niece who made lots of purple ribbons, the school nurse who loaned us the book, Mayor Seghini, The Epilepsy Association of Utah and for Megan Cassidy the founder of Purple Day who all helped make my daughter’s experience with Purple Day wonderful.

Soon, hopefully tomorrow I will post links to the bloggers, authors and others who are participating I have been very impressed with the level of support we have gotten for Purple Day especially with such short notice. If you are still interested in participating there is still time the Mini-challenge for Purple Day ends on March 31st.

Posted in News | Tagged: , | 5 Comments »

Becky the Brave: A Story About Epilepsy by Laurie Lears, Illustrated by Gail Piazza

Posted by caribookscoops on March 24, 2010

Becky the Brave: A Story About Epilepsy by Laurie Lears and illustrated by Gail Piazza is the only book I could find at either public library system in my area. I of course had to get my hands on it and within a week of my daughter’s diagnosis we were able to check it out. Gratefully, Lears does an excellent job in this book and my daughter really liked it. I tend to turn to books in times of crisis. Actually that’s probably an understatement, I look to books all the time to deal with life events. When my husband and I would ask her if she had any questions she would say ‘no’. However, after reading Becky the Brave she asked question after, after question, after question. I believe what Becky the Brave did for her was give the vocabulary and a story back drop in which to place her own experience with epilepsy. My daughter does not remember her seizures, which we are grateful for, but it does make it difficult to understand why all the fuss. I am so glad that our library system had a copy of this book.

The basic story is about two sisters, Becky the older one who has epilepsy and who is brave. They have recently moved and are attending a new school, which Sarah is not excited about. It is told from the point-of-view of her little sister Sarah who obviously adores her big sister. Becky is brave and not shy and even stands down a vicious dog when they are walking to school. Sarah also describes how brave Becky is in dealing with epilepsy and describes what happens then Becky has a seizure. One day Becky has a seizure at school and doesn’t want to return because she is afraid people will make fun of her. Sarah however turns out to be just as brave as her sister when she goes to get Becky’s homework and then talks to Becky’s classmates about epilepsy and how it just one part of her sister. Becky’s classmates, like a lot of people did not understand what was happening and needed some explanation of what epilepsy is and how to deal with it.

I would highly recommend this book for use with children with epilepsy or in a classroom to help other children (and adults) understand what epilepsy is about. I read this book to her class at school as well our church’s children’s group to help other children understand and be prepared in the event of a seizure. Lears does an excellent job with the research and I feel her portrayal of epilepsy is accurate. Gail Piazza’s illustrations definitely added to the text and helped add to the understanding of the whole story line. My daughter spent a lot of time studying the pictures and I think she does a good job of portraying a seizure without making it seem scary.

Visit Gail Piazza’s Website.

What other books to people recommend for children that deal with epilepsy or other issues?

This post is part of Bookscoops efforts to raise epilepsy awareness and is included in our Purple Day Challenge.

Posted in Picture Books | Tagged: | 9 Comments »

A Mini Challenge for Purple Day: Supporting Epilepsy Awareness Around the World on March 26

Posted by caribookscoops on March 21, 2010

Please note we are doing another challenge for Purple Day including two book giveaways of When You Reach Me by Rebecca Stead and The Day-Glo Brothers by Chris Barton. Click on the link or the button to read our current challenge. Spread the word and use our button.

 

Bookscoops is thrilled to announce that our blue theme is going purple this week!!!! My sister, Holly, and I are excited to host a Purple Day challenge. I recently learned about Purple Day, an international day to promote epilepsy awareness held on March 26th. Purple Day was started by a 9 year old girl in Canada named Cassidy Megan. Cassidy wanted to let other people with epilepsy, especially children, know that they are not alone. My daughter was very excited to learn that other children have epilepsy and our whole family plans to wear purple that day. We even went out and picked out a purple shirt for Dad. Holly and I decided to host a Purple Day challenge on our blog to join in Cassidy’s efforts to increase epilepsy awareness world wide.

Why is Bookscoops going Purple for Epilepsy?

My oldest daughter was diagnosed almost 5 months ago with epilepsy. She has Generalized Seizure Disorder and experiences Tonic-Clonic Seizures, formerly known as Grand Mal. This has been a painful journey as I have watched my daughter struggle with this disorder. She is very bright and full of potential. Epilepsy is only part of her as a human being as she loves to read, spend time with friends, swim and play violin. One of my biggest frustrations is the lack of information and misconceptions surrounding this disorder and particularly the lack of funding it receives. I feel that one of the best ways to help her deal with this is to raise awareness. Her life with epilepsy can be made easier and safer as more people know about this common disorder and learn how to respond with appropriate first aid.

Cari's Daughter in Purple - Photo by Jessie Lynne Photography click on photo for current giveaway

In addition, we wanted to raise awareness about epilepsy because it is the second most common reason people see a neurologist behind migraine. Epilepsy affects 50 million people world wide and about 3 million people living in the United States have epilepsy. More people have this condition than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson’s disease combined. Unfortunately, a lot of myths and false ideas are still being perpetuated about epilepsy (such as it is a mental condition or that epilepsy is contagious). Some of these misconceptions have caused many people to become isolated and live in fear and shame that someone will find out about their condition and many people have faced discrimination based on their medical diagnosis.

 

Who Can Participate and How to Participate?

There are number of ways to participate in our first annual Purple Day Challenge and because we love to promote literacy we are combining both reading and Purple Day starting on March 21st and ending on March 31st. While our blog focuses on children and adolescent literature we are inviting anyone to go purple!!!! So that means any person, book blogger or blogger who wants to promote Purple Day may participate. To make this easy on you (and us) choose any or all of the following.

 

  1. Post the Purple Day Button on your blog starting on Sunday March 21st through Saturday March 27th and write a post promoting Purple Day. Please note we have received permission to use the Purple Day logo as part of this challenge. If you choose this option you must read and agree to the copyright notice on the Purple Day website by using the logo you are stating that you have read and agree to their terms of use. Two sizes of buttons are at the bottom of this post.
  2. Read a book about epilepsy and post a review. For a list of books for children go to Epilepsy.Com.
  3. Read a book by or about a famous person with epilepsy and post a review. Cari’s daughter’s favorite so far is The Day-Glo Brothers: The True Story Behind Bob and Joe Switzer’s Bright Ideas and Brand-New Colors, which also is a Cybils winner for 2009. Some names you might know are Harriet Tubman, Alfred Nobel and Charles Dickens and more recently actor Danny Glover, football player Alan Faneca and track star, Florence Griffin Joyner known as Flo Jo. For a more complete list visit The Epilepsy Foundation or if you’re a fan of Wikipedia see the List of Famous people with Epilepsy, which to be honest seems to be the best documented list we’ve found so far.
  4. Read a book that promotes self-confidence and acceptance in children and post a review. Suggested books so far with a very appropriate title, Purplicious by Victoria Kann and Elizabeth Kann and Little Skink’s Tail by Janet Halfmann, illustrated by Laurie Allen Klein.
  5. If you or a family has dealt with epilepsy write a post sharing your experience.
  6. Wear purple on March 26th and tell people why you are wearing purple.
  7. Click on the link to watch the 60 Minute Special on Epilepsy and write about what the things that you learned you in a blog post, or if you don’t have a blog put it in the comments for this post.
  8. Have an idea not listed above submit it and we’ll give you another entry. Cari’s niece is making 600+ purple ribbons for her school. So if you think of something put a comment in the comments below.

For every entry we receive, Cari will donate 25¢ per entry for a total of fifty dollars to a non-profit organization that works towards epilepsy awareness and/or research and Holly will match Cari’s donation. Multiple entries are possible. One entry equals doing one of the seven items listed above.

Our Goals for this Challenge

Our goal is three-fold 1) to promote Purple Day and raise epilepsy awareness, 2) to dispel myths surrounding epilepsy and 3) to compile a more comprehensive list of books that portray epilepsy and/or people with epilepsy accurately, especially for children. Finally we do hope to raise some money for epilepsy awareness.

How to Enter and When Does it End?

Sign-up in the comments below telling us who you are and what you are planning on doing to participate. Make sure you leave a link to your blog. If you post about this challenge please leave us a link in the comments to your post and we will put together a list of everyone who participated with links to their blog posts as the week progresses. The Purple Day mini-challenge begins on March 21st and ends March 31st, midnight MST.

Rewards for this Challenge:

We would love to offer prizes, but at this point we don’t have anything to offer except the good feeling that you are helping other people become aware of a disorder that affects millions of people world wide. We might consider it for future years. However, remember Cari is willing to donate .25¢  up to a total of fifty dollars and Holly will match her donation to a non-profit organization that works towards epilepsy awareness and/or research for each person who commits to participate by doing any of the 8 options above. See above for details of how to enter and participate.

Non-profit Groups that promote Epilepsy Awareness, Education and Fund Research

Consider donating to one of the groups below:

Purple Day – Founded by nine-year old Cassidy Megan to promote global epilepsy awareness.

CURE Citizens United for Research in Epilepsy – raises money for epilepsy research.

Epilepsy Foundation an organization dedicated to advocacy, education and research.

Epilepsy Association of Utah – The group in Cari’s state dedicated to educating the public and supporting persons and their families with epilepsy.

Anita Kaufman Foundation – Dedicated to educating the public to not fear epilepsy.

Purple Day Button

We have provided two sizes for the button. If you would like to use the Purple Day Button you must read and agree to the copyright notice on the Purple Day website by using the logo you are stating that you have read and agree to their terms of use.

Posted in Challenges, News | Tagged: , | 36 Comments »

 
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